Many nights I laid awake
Overdosing on pure pain
Heartbreak and a side of pills
Whiskey bottle’s still call my name
Now and then like an old friend
Lost some place against the grain
The hands of time still ticking
The winds of life keep going by
I feel that cold winter breeze
That lets me know I’m still alive
And I can’t lie, I’ve been hurt bad
I told myself don’t turn back
Gotta go and find what I’m searching for
God knows I deserve that
And sometimes I still dream
Wake up in a pool of sweat
That sun shining through the blinds
Just in time for the sunset
Still finding good in all the bad
But all the good ain’t come yet
I take a look into my daughter’s eyes
It lets me know I ain’t done yet
I’ve been running blind through the darkness
Over time became heartless
But I’m still gonna shine regardless
And if you ever doubted me
Well that’s ok just wait and see
Cause I haven’t met one single person
That could ever doubt me as much as me

I’ve been spending all this time
Tryna pick up all the pieces
Tryna walk a line and fight away all my demons
So if you stick around, so maybe you can see
One day I’ll make you proud
Right now you don’t believe me
That’s ok
I’ll probably burn every bridge along the way
But that’s ok
Cause I’m still standing here today

~Nu Breed & Jesse Howard

This afternoon, at work, I was making some phone calls. I suddenly remembered something that had happened while I made our collection calls, some two months or so ago. The man I’d called had answered the phone and immediately began to describe how he would rape me. I hung up the phone, and within a minute, our phone was ringing. I answered with our typical greeting, “Thank you for choosing [our company]. This is [Eve]. How can I help you?” A familiar voice responded, “What are you wearing, Eve?” I slammed the phone back down into its cradle, and I began to shake as a rush of adrenaline, fear, and anger washed over me. I took a break, and returned 15 minutes later to finish my phone calls. I had been working alone, that day. It wasn’t until this afternoon that I shared this incident with my manager. She looked horrified and asked me why hadn’t I said something sooner?! I didn’t have a good answer. The truth was, I’d forgotten it. All these days I’ve continued to make daily phone calls at work, and wasn’t reminded of that one. Today, it wasn’t a phone conversation, or anything you’d expect would jog a memory like this one, that brought it back to the surface in my mind. It was the sunshine pouring through the windows. The way the sun shone into my office was the spark that ignited the memory of that flame. I’m aware of how strange that must seem. Hell, I think it’s weird! My manager was flabbergasted, asking how I can just “forget” something like that. The thing of it is, that’s nothing new for me. I’ve been this way for as long as I can remember. I’ve had stressful or traumatic memories dating back as far as my early childhood that I’ve only remembered well into adulthood. The way I describe it, it’s like being told about some amazing tacos you had at this restaurant last night. You ask if I’ve ever tried their tacos. I’m not lying when I answer, nope. So one day, you and I go to this restaurant, order their tacos, and I genuinely believe this is my first time having them. Over the next several months, we get these tacos multiple times. And then, one day, it dawns on me. I used to come to this place with my grandma! The last time we were there, [something awful happened], and we never visited that restaurant again. I can recall every detail from the last time I’d been there, with my grandma. I remember what I was wearing. I remember my grandma’s purse, and how I’d been playing with the little tassel that hung from its zipper. I remember the rain that was falling down onto us, and the puddle I’d not so accidentally splashed in as my grandma hurried me inside… All these years later, after all the times I’d gotten these tacos with you, it wasn’t until this moment I had ever remembered any of that. The sight and the smells at the restaurant, its name, their delicious tacos, none of that was the trigger that unleashed the flood of memories I’d apparently kept suppressed deep within my memory. It was the rain. It was the puddle of water I’d cautiously avoided, as I hurried inside, today. That is exactly how my brain manages to pull long forgotten memories from whatever place they’ve been hidden. That is exactly how I handle overwhelmingly stressful events. I simply “forget”, until I remember.

I’m not sure there’s a clear point I can make with all of that. It’s just something I recognized in myself, today.

I’ve been doing a lot of crafting and redecorating, lately. I’m doing my best to embrace the opportunities to make changes around me that can reflect who and where I’m at, today. I’ve really done a whole lot of things different, at home. Looking around my house, everything’s familiar, but it’s also not the way it used to be. I’m growing to be ok with that. I’m able to find beauty in what’s around me. And, if I can’t see it where I used to, I’ll repaint, or add a bow. Anything to bring the light back into the place I call home. It feels more like home, again. Like maybe I’m actually finding my way back home.

Lately I’ve been wondering

When it’s all gonna end

‘Cause I’m tired of bein’ sick and tired

And I ain’t got much more in me

I’m running outta steam

And there ain’t no sleep for the wicked

So I’ve just been doin’ me

And so far it’s safe to say

That I haven’t been doin’ so well

~Chris Hosier

As has been a reoccurring theme here, lately, there’s a whole lot of shit going on. My sweet daughter has been having some knee pain for about a year, now. A few weeks ago, she suddenly couldn’t even walk. She couldn’t bend or straighten her left knee, and she had tears pouring down her face from the pain. I brought her back to her doctor, to again search for answers about what in the hell was happening. I’d taken her into the doctor no less than five times prior, looking to find an explanation for her worsening symptoms. She had X-rays done (for the third time since this began). This time, her doctor noticed something “suspicious”. We were referred to an orthopedic surgeon. An orthopedic oncologist surgeon, to be precise. She was seen there just two days later. They did MRI scans, and this doctor was able to give us some clarity. Some. He is relatively certain he knows exactly what’s causing her problems. Mercifully, he’s confident the growth is benign, but she has an abnormal growth in the cartilage around her knee. It has actually damaged her bone, to the point she has a piece of the lower part of her femur that’s broken off and is now just floating around in her knee area. As if that isn’t painful enough, this piece of bone is sometimes getting caught up in her knee joint, and prevents her from being able to bend or straighten her knee until it finally moves again. She will be going in for some pretty serious surgery, here very soon. I’m praying she’ll only need one surgery, but he warned us that’s unlikely. It’s possible, but the odds are she’s going to end up needing to have at least one more surgery after this one. They will cut out the growth within her cartilage and bone, and remove unhealthy tissue and bone. They’ll then be placing pins in her femur, in an attempt to get new healthy bone and cartilage to grow back. She’ll be in a full leg cast for 6 weeks, and then start rehab and physical therapy. Unless she isn’t able to grow new bone and cartilage. If that’s the case, and the surgeon stressed that cartilage is notoriously difficult to repair, they’ll need to do a bone graft. That surgery would mean taking some of her pelvic bone and grafting it onto her femur bone.

Adam’s mom is going in for a lung biopsy, next week. The results will determine one of two possible paths she’ll be taking. Either they’ll begin aggressive chemotherapy, to prolong her life as much as possible, OR she’ll be sent home on palliative care, to help keep her as comfortable as possible because chemo would be ineffective and would only make her feel unwell through all her last days with us. So, this biopsy will be a huge determining factor as far as hers and all of our foreseeable future goes. We’re all planning to take her to Cancun, Mexico, this Summer. It’s on her “bucket list”, and we intend to do everything we can to make sure it happens.

I talked with my manager, at work, a couple weeks ago. At first, I’d told her I have to quit. After I realized my daughter needed an appointment with an oncologist, that was my final straw. My manager cried and told me she totally understood, and to do whatever I need to do for my baby. But, she insisted she has my back at work. She told me she loves me, and doesn’t want to lose me. I think we’ve decided that I’ll first try dropping my hours down to part time. We’ll schedule around the things I need to do for my family, and I’ve got 3 and a half weeks of vacation time, 16 hours of paid floating holiday time, plus a week and a half left of sick time I can use while my daughter recovers and when we need to go visit Adam’s mom. I know how lucky I am to have such an understanding and empathetic manager, with a job that has a flexible schedule that could allow me to be here for my family. Hopefully. Hopefully it can all work out. Maybe one of these days we can have some semblance of normality brought back into our lives, and me and my family can finally put ourselves back together again. Until then, I’ll just have to keep clinging to the rope I’ve found myself attached to, dangling precariously over an unknown abyss I’d rather not discover the inside of. Every time I ask myself, “How could things possibly get any harder?”, they do.

I am not okay
I’m barely getting by
I’m losing track of days
And losing sleep at night
I am not okay
I’m hanging on the rails
So if I say I’m fine
Just know I learned to hide it well

I woke up today
I almost stayed in bed
Had the devil on my back
And voices in my head
Some days, it ain’t all bad
Some days, it all gets worse
Some days, I swear I’m better off
Layin’ in that dirt

I know, I can’t be the only one
Who’s holding on for dear life
But God knows, I know
When it’s all said and done
I’m not okay
But it’s all gonna be alright
It’s not okay
But we’re all gonna be alright

I know one day
We’ll see the other side
The pain’ll wash away
In a holy water tide
And we all gonna be alright

~Jelly Roll

Life’s been heavy, these last few weeks. This is so fucking hard. It’s not alright. This isn’t okay. For the life of me, I can’t understand why? When will we get to the other side of this hell? Will we even make it? And, if we do survive this, what does our life look like? What and who will be left standing?

Last Thursday, I went to parent teacher conferences. MJ’s teachers always love her. They told me many of the same things I’m used to hearing at these conferences. She’s a great student. She’s polite and respectful and kind. This time, there was a “but” after those initial comments. BUT, Mj has periods of intense and overwhelming sadness, and that concerns us. Mj and I spent time talking together, when we left her parent teacher conferences. We had a plan, and we both felt good about it. This was figure-out-able. We’ve got this. We arrived home, and were both giggling as we opened the front door and stepped inside. The moment we entered, a mixture of anxiety and sadness bombarded our senses. The air all around had suddenly grown thick with the energy and emotions that radiated from just inside our living room, where Adam was seated, and it penetrated both Mj and myself. I don’t remember making the walk over to Adam. The next thing I knew, I was standing in front of him, asking what’s going on? He told me to sit down. I dismissed his request, and gently but firmly demanded the answer to my question. He had hung up the phone, after speaking to his mom, just moments before we’d gotten home.

Adam’s mom has been going to multiple appointments, visiting many different doctors and having a variety of tests and procedures necessary to gather all possible information about her cancer. Every time she’s received the results, it’s been not good. She’s taken on every single challenge and refused to be discouraged by any obstacle she’s encountered. Until Thursday. Thursday, she had gone for a full body scan. We’d learned the size of the tumor in her breast was very very large, 2 days earlier. Her doctors had sent her for the full body scan, because the size gave them new concerns.

I’m really struggling to write what comes next, here.

Her cancer has spread within her body. They can do chemotherapy, in an attempt to prolong her life, but her cancer is terminal.

I stood in front of my husband, absolutely stunned. I couldn’t think or move, until he began to cry. He cried like I’ve never heard him cry. His wailing sobs, as his body shook uncontrollably, gave me a view of the raw, pure, unrestrained pain he was experiencing. For a moment, in the most vulnerable minutes I’ve ever witnessed my husband inside, I saw the brokenness he couldn’t hide from me. All I could do was hold him. I wrapped my arms around him and repeated over and over, I’m so sorry. I’m so sorry.

Adam didn’t stay like that for long, although I’m certain he’s merely masking his unrelenting pain, as he always does. I so wish I knew how to make things get better. If only I could. I’d do anything. I’d give my life, if that prevented my family from ever again feeling the kind of agony I see and feel from them.

I’m overwhelmed. I’m exhausted. I’m fighting like hell, anyway. My family needs me. My husband needs me to be strong for the moments he can’t. My babies need their mama.

It’s not okay
But we’re all gonna be alright
I’m not okay
But it’s all gonna be alright