I Am Not Okay…

I am not okay
I’m barely getting by
I’m losing track of days
And losing sleep at night
I am not okay
I’m hanging on the rails
So if I say I’m fine
Just know I learned to hide it well

I woke up today
I almost stayed in bed
Had the devil on my back
And voices in my head
Some days, it ain’t all bad
Some days, it all gets worse
Some days, I swear I’m better off
Layin’ in that dirt

I know, I can’t be the only one
Who’s holding on for dear life
But God knows, I know
When it’s all said and done
I’m not okay
But it’s all gonna be alright
It’s not okay
But we’re all gonna be alright

I know one day
We’ll see the other side
The pain’ll wash away
In a holy water tide
And we all gonna be alright

~Jelly Roll

Life’s been heavy, these last few weeks. This is so fucking hard. It’s not alright. This isn’t okay. For the life of me, I can’t understand why? When will we get to the other side of this hell? Will we even make it? And, if we do survive this, what does our life look like? What and who will be left standing?

Last Thursday, I went to parent teacher conferences. MJ’s teachers always love her. They told me many of the same things I’m used to hearing at these conferences. She’s a great student. She’s polite and respectful and kind. This time, there was a “but” after those initial comments. BUT, Mj has periods of intense and overwhelming sadness, and that concerns us. Mj and I spent time talking together, when we left her parent teacher conferences. We had a plan, and we both felt good about it. This was figure-out-able. We’ve got this. We arrived home, and were both giggling as we opened the front door and stepped inside. The moment we entered, a mixture of anxiety and sadness bombarded our senses. The air all around had suddenly grown thick with the energy and emotions that radiated from just inside our living room, where Adam was seated, and it penetrated both Mj and myself. I don’t remember making the walk over to Adam. The next thing I knew, I was standing in front of him, asking what’s going on? He told me to sit down. I dismissed his request, and gently but firmly demanded the answer to my question. He had hung up the phone, after speaking to his mom, just moments before we’d gotten home.

Adam’s mom has been going to multiple appointments, visiting many different doctors and having a variety of tests and procedures necessary to gather all possible information about her cancer. Every time she’s received the results, it’s been not good. She’s taken on every single challenge and refused to be discouraged by any obstacle she’s encountered. Until Thursday. Thursday, she had gone for a full body scan. We’d learned the size of the tumor in her breast was very very large, 2 days earlier. Her doctors had sent her for the full body scan, because the size gave them new concerns.

I’m really struggling to write what comes next, here.

Her cancer has spread within her body. They can do chemotherapy, in an attempt to prolong her life, but her cancer is terminal.

I stood in front of my husband, absolutely stunned. I couldn’t think or move, until he began to cry. He cried like I’ve never heard him cry. His wailing sobs, as his body shook uncontrollably, gave me a view of the raw, pure, unrestrained pain he was experiencing. For a moment, in the most vulnerable minutes I’ve ever witnessed my husband inside, I saw the brokenness he couldn’t hide from me. All I could do was hold him. I wrapped my arms around him and repeated over and over, I’m so sorry. I’m so sorry.

Adam didn’t stay like that for long, although I’m certain he’s merely masking his unrelenting pain, as he always does. I so wish I knew how to make things get better. If only I could. I’d do anything. I’d give my life, if that prevented my family from ever again feeling the kind of agony I see and feel from them.

I’m overwhelmed. I’m exhausted. I’m fighting like hell, anyway. My family needs me. My husband needs me to be strong for the moments he can’t. My babies need their mama.

It’s not okay
But we’re all gonna be alright
I’m not okay
But it’s all gonna be alright